An Intervention in Congruence for End-of-Life Treatment Preference: A Randomized Trial.

ABSTRACT:

Background and objectives

There is a gap in family knowledge of their adolescents' end-of-life (EOL) treatment preferences. We tested the efficacy of Family Centered Advance Care Planning for Teens with Cancer (FACE-TC) pediatric advance care planning (to increase congruence in EOL treatment preferences.

Methods

Adolescents with cancer/family dyads were randomized into a clinical trial from July 2016 to April 2019 at a 2:1 ratio: intervention (n = 83); control (n = 43) to either 3 weekly sessions of FACE-TC (Lyon Advance Care Planning Survey; Next Steps: Respecting Choices Interview; Five Wishes, advance directive) or treatment as usual (TAU). Statement of Treatment Preferences measured congruence.

Results

Adolescents' (n = 126) mean age was 16.9 years; 57% were femal

SUBMITTER: Baker JN 

PROVIDER: S-EPMC9648108 | biostudies-literature | 2022 May

REPOSITORIES: biostudies-literature