Transitions from pediatric to adult rheumatology care for juvenile idiopathic arthritis: a patient led qualitative study.

ABSTRACT:

Background

Juvenile idiopathic arthritis (JIA) is a childhood autoimmune disease that causes swelling and pain in at least one joint. Young people with JIA experience symptoms that persist into adulthood, and thus will undergo a transition including the o transfer of care from a pediatric rheumatologist an adult rheumatologist. Missing from the literature is research that centres the transition experience of young people with JIA in Canada. This goal of this patient-led research was to explore the experience young people with JIA through the process of transition.

Methods

Qualitative study using the Patient and Community Engaged Research (PaCER) approach. Trained patient-researchers conducted three focus groups using the Set, Collect and Reflect PaCER process. Participants,

SUBMITTER: Currie GR 

PROVIDER: S-EPMC9664794 | biostudies-literature | 2022 Nov

REPOSITORIES: biostudies-literature