Juvenile Dermatomyositis: what comes next? Long-term outcomes in childhood myositis from a patient perspective.

ABSTRACT:

Background

To describe long-term outcomes in JDM using patient questionnaires and link to longitudinal, prospectively collected data for each patient within the Juvenile Dermatomyositis Cohort and Biomarker Study, UK and Ireland (JDCBS) to determine outcome predictors.  METHODS: JDCBS participants aged ≥ 16y completed the SF36, HAQ and a questionnaire regarding current disease features, medications, education and employment. Data collected from the JDCBS included disease subtype, demographics, clinical and laboratory features. Intensity indices were calculated for physician VAS, modified skin DAS, CMAS and MMT8 by dividing area under the curve (AUC) from longitudinal score trajectories by duration of study follow-up (y). Relationships between questionnaire and JDCBS clinical / labo

SUBMITTER: Boros C 

PROVIDER: S-EPMC9670456 | biostudies-literature | 2022 Nov

REPOSITORIES: biostudies-literature