Feedback of individual genetic and genomics research results: A qualitative study involving grassroots communities in Uganda.

ABSTRACT:

Background

Genetics and genomics research (GGR) is associated with several challenges including, but not limited to, methods and implications of sharing research findings with participants and their family members, issues of confidentiality, and ownership of data obtained from samples. Additionally, GGR holds significant potential risk for social and psychological harms. Considerable research has been conducted globally, and has advanced the debate on return of genetic and genomics testing results. However, such investigations are limited in the African setting, including Uganda where research ethics guidance on return of results is deficient or suboptimal at best. The objective of this study was to assess perceptions of grassroots communities on if and how feedback of individual g

SUBMITTER: Ochieng J 

PROVIDER: S-EPMC9674126 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature