Co-management of communication and care in adolescent and young adult oncology.

ABSTRACT:

Background

Clinicians have an ethical and practical imperative to engage adolescents and young adults (AYAs) with cancer in communication and care. Many young AYAs have involved parents, but guidelines for co-management of care with AYAs and their parents are lacking.

Methods

We performed 37 semistructured interviews with AYAs aged 12-24 years at diagnosis, recruiting them from two pediatric cancer centers. We performed thematic analysis, aiming to understand how AYAs and their parents navigate their roles in communication and care.

Results

We identified six roles that AYAs co-managed with their parents: (1) managing information, (2) managing social and emotional needs, (3) managing health, (4) advocating and empowering, (5) making decisions, and (6) managing logistic

SUBMITTER: Sisk BA 

PROVIDER: S-EPMC9681027 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature