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Dataset Information

Investigating characteristics of idiopathic inflammatory myopathy flares using daily symptom data collected via a smartphone app.


ABSTRACT:

Objective

The objective of this study was to use daily data collected via a smartphone app for characterization of patient-reported and symptom-based (using an a priori definition) flares in an adult idiopathic inflammatory myopathy (IIM) cohort.

Methods

UK adults with an IIM answered patient-reported outcome measurements (PROMs) daily via a smartphone app during a 91-day study. Daily symptom PROMs addressed global activity, overall pain, myalgia, fatigue, and weakness (on a 0-100 visual analogue scale). Patient-reported flares were recorded via a weekly app question. Symptom-based flares were defined via an a priori definition related to increase in daily symptom data from the previous 4-day mean.

Results

Twenty participants (65% female) participated. Patient-reporte

SUBMITTER: Oldroyd AGS 

PROVIDER: S-EPMC9707041 | biostudies-literature | 2022 Nov

REPOSITORIES: biostudies-literature