Benefit sharing in genomic and biobanking research in Uganda: Perceptions of researchers and research ethics committee members.

ABSTRACT: Background: Genomic and biobanking research has increased in Africa over the past few years. This has raised pertinent ethical, legal, and societal concerns for stakeholders such as sample or data ownership, commercialization, and benefit sharing. There is limited awareness of the concept of benefit sharing by stakeholders in sub-Saharan Africa. Objective: This study aimed to explore the perceptions of researchers and research ethics committee members on benefit sharing in international collaborative genomic and biobanking research. Methods: Qualitative in-depth interviews were conducted with 15 researchers and 19 research ethics committee members. A thematic approach was used to interpret the results. Results: Six themes emerged from the data and these included

SUBMITTER: Mwaka ES 

PROVIDER: S-EPMC9714451 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature