"Captive by the Uncertainty"-Experiences with Anticipatory Guidance for People Living with Dementia and Their Caregivers at a Specialty Dementia Clinic.

ABSTRACT:

Background

After a diagnosis of Alzheimer's disease and related disorders, people living with dementia (PWD) and caregivers wonder what disease trajectory to expect and how to plan for functional and cognitive decline. This qualitative study aimed to identify patient and caregiver experiences receiving anticipatory guidance about dementia from a specialty dementia clinic.

Objective

To examine PWD and caregiver perspectives on receiving anticipatory guidance from a specialty dementia clinic.

Methods

We conducted semi-structured interviews with PWD, and active and bereaved family caregivers, recruited from a specialty dementia clinic. Interviews were recorded, transcribed, and systematically summarized. Thematic analysis identified anticipatory guidance received from cl

SUBMITTER: Shafir A 

PROVIDER: S-EPMC9717709 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature