Development of a set of patient reported outcome measures for patients with benign liver tumours and cysts: patient focus groups and systematic review.

ABSTRACT:

Background

Patient reported outcome measures (PROMs) may be useful for patients with benign liver tumours and cysts (BLTC) to evaluate the impact of treatment and/or guide shared decision making. Yet, a set of PROMs relevant to patients with BLTC is currently unavailable. In this study, we selected a PROMs set for patients with BLTC.

Methods

Potentially relevant patient reported outcomes (PROs) were selected by psychologist-researchers based on keywords used or suggested by participants of two virtual focus groups meetings consisting of thirteen female BLTC patients with a median age of 50 years. Subsequently, patients were asked to report their most relevant PROs. PROMs identified by systematic literature review and computerized adaptive tests (CATs) in the Patient-Reported

SUBMITTER: Furumaya A 

PROVIDER: S-EPMC9733760 | biostudies-literature | 2022 Dec

REPOSITORIES: biostudies-literature