Modernization of a Large Spinal Cord Injuries and Disorders Registry: The Veterans Administration Experience.

ABSTRACT: Since the 1990s, Veterans Health Administration (VHA) has maintained a registry of Veterans with Spinal Cord Injuries and Disorders (SCI/Ds) to guide clinical care, policy, and research. Historically, methods for collecting and recording data for the VHA SCI/D Registry (VSR) have required significant time, cost, and staffing to maintain, were susceptible to missing data, and caused delays in aggregation and reporting. Each subsequent data collection method was aimed at improving these issues over the last several decades. This paper describes the development and validation of a case-finding and data-capture algorithm that uses primary clinical data, including diagnoses and utilization across 9 million VHA electronic medical records, to create a comprehensive registry of living and deceased

SUBMITTER: Sippel JL 

PROVIDER: S-EPMC9761267 | biostudies-literature | 2022 Dec

REPOSITORIES: biostudies-literature