Knowledge, perceptions and behaviours regarding dietary management of adults living with phenylketonuria.

ABSTRACT:

Background

Lifelong dietary treatment remains the mainstay for many with phenylketonuria (PKU); however, adherence is known to reduce with age. It remains unclear whether knowledge and perceptions of the PKU diet amongst adults with PKU influence dietary behaviours.

Methods

A nationwide questionnaire survey was performed to investigate the knowledge and perceptions, and associated diet behaviours of adults with PKU in the UK. The survey was sent to adults with PKU under the care of the host hospital and members of the National Society of PKU.

Results

One hundred and thirty-seven respondents (n = 78 females, 56.9%) completed the survey with a mean age of 34 years and 4 months (16-65 years). Sixty (43.8%) respondents had always followed a PKU diet, 39 (28.5%) returned t

SUBMITTER: Firman SJ 

PROVIDER: S-EPMC9790708 | biostudies-literature | 2022 Dec

REPOSITORIES: biostudies-literature