The ethical and legal landscape of brain data governance.

ABSTRACT: Neuroscience research is producing big brain data which informs both advancements in neuroscience research and drives the development of advanced datasets to provide advanced medical solutions. These brain data are produced under different jurisdictions in different formats and are governed under different regulations. The governance of data has become essential and critical resulting in the development of various governance structures to ensure that the quality, availability, findability, accessibility, usability, and utility of data is maintained. Furthermore, data governance is influenced by various ethical and legal principles. However, it is still not clear what ethical and legal principles should be used as a standard or baseline when managing brain data due to varying practices and

SUBMITTER: Ochang P 

PROVIDER: S-EPMC9799320 | biostudies-literature | 2022

REPOSITORIES: biostudies-literature