Assessment of transition readiness to predict health care utilization during transition to adult care in sickle cell disease.

ABSTRACT:

Background

Transition-age patients with sickle cell disease (SCD) are at risk for poor outcomes associated with incomplete transition readiness and neurocognitive deficits. Study objectives were to: 1) test if a SCD-specific measure of self-management skills was associated with transition outcomes and 2) evaluate if caregiver-reported executive functioning was associated with self-management skills and transition outcomes among youth with SCD.

Research design and methods

Youth/caregivers were selected from a longitudinal cohort study. Caregivers completed the Behavior Rating Inventory of Executive Function (BRIEF); caregivers and youth completed the Self-Management Skills Checklist (SMSC) at a median age of 16.8 ± 0.6 years. Non-parametric tests compared SMSC and transition

SUBMITTER: Howell KE 

PROVIDER: S-EPMC9809157 | biostudies-literature | 2022 Dec

REPOSITORIES: biostudies-literature