A replicable, open-source, data integration method to support national practice-based research & quality improvement systems.

ABSTRACT:

Objectives

The Epilepsy Learning Healthcare System (ELHS) was created in 2018 to address measurable improvements in outcomes for people with epilepsy. However, fragmentation of data systems has been a major barrier for reporting and participation. In this study, we aimed to test the feasibility of an open-source Data Integration (DI) method that connects real-life clinical data to national research and quality improvement (QI) systems.

Methods

The ELHS case report forms were programmed as EPIC SmartPhrases at Mass General Brigham (MGB) in December 2018 and subsequently as EPIC SmartForms in June 2021 to collect actionable, standardized, structured epilepsy data in the electronic health record (EHR) for subsequent pull into the external national registry of the ELHS. Followin

SUBMITTER: Fernandes M 

PROVIDER: S-EPMC9810436 | biostudies-literature | 2022 Oct

REPOSITORIES: biostudies-literature