Collaborative decision-making: A framework for decision-making about life-sustaining treatments in children with medical complexity.

ABSTRACT:

Objective

Caregivers of children with medical complexity (CMC) face decisions about life-sustaining treatments (LST) like tracheostomy. We sought to develop a clinically relevant and realistic model for decision-making about tracheostomy placement that might apply to other LST in CMC.

Design

This qualitative study, conducted between 2013 and 2015, consisted of 41 interviews with 56 caregivers of CMC who had received tracheostomies and 5 focus groups of 33 healthcare providers (HCPs) at a tertiary-care children's hospital in North Carolina. Participants were asked about their perspectives on the tracheostomy decision-making process. Data were transcribed, and coded. Using thematic content analysis, we inductively developed a tracheostomy decision-making framework and process.

SUBMITTER: Nageswaran S 

PROVIDER: S-EPMC9825978 | biostudies-literature | 2022 Dec

REPOSITORIES: biostudies-literature