Stakeholder engagement infrastructure to support multicenter research networks: Advances from the clinical research networks participating in PCORnet.

ABSTRACT:

Background

The evidence based on the inclusion of patients and other stakeholders as partners in the clinical research process has grown substantially. However, little has been reported on how stakeholders are engaged in the governance of large-scale clinical research networks and the infrastructure used by research networks to support engagement in network-affiliated activities.

Objectives

The objective was to document engagement activities and practices emerging from Clinical Research Networks (CRNs) participating in PCORnet, the National Patient-Centered Clinical Research Network, specifically regarding governance and engagement infrastructure.

Methods

We conducted an environmental scan of PCORnet CRN engagement structures, assets, and services, focusing on network

SUBMITTER: Cope EL 

PROVIDER: S-EPMC9835038 | biostudies-literature | 2023 Jan

REPOSITORIES: biostudies-literature