An online survey of the Spanish Lupus Patient Association (FELUPUS): patient perceptions and experiences.

ABSTRACT:

Objectives

A survey conducted by the Spanish Lupus Federation (FELUPUS) shows the results on perceptions and experiences of the people who live with lupus in Spain. The information was gathered anonymously from May 21^st to June 30^th, 2020. The aim of the study was to monitor the impact of the disease on quality of life, as well as to measure the impact of organ damage in lupus patients.

Methods

A national survey was conducted among people with lupus living in Spain who belong to the Spanish Lupus Patient Association (FELUPUS). Online interviews of approximately 25 min were completed. The information was gathered anonymously from May 21^st to June 30^th, 2020.

Results

One thousand two hundred sixty-three interviews were complet

SUBMITTER: Salman-Monte TC 

PROVIDER: S-EPMC9838362 | biostudies-literature | 2023 May

REPOSITORIES: biostudies-literature