Conducting clinical genomics research during the COVID-19 pandemic: Lessons learned from the CSER consortium experience.

ABSTRACT: Clinical research studies have navigated many changes throughout the COVID-19 pandemic. We sought to describe the pandemic's impact on research operations in the context of a clinical genomics research consortium that aimed to enroll a majority of participants from underrepresented populations. We interviewed (July to November 2020) and surveyed (May to August 2021) representatives of six projects in the Clinical Sequencing Evidence-Generating Research (CSER) consortium, which studies the implementation of genome sequencing in the clinical care of patients from populations that are underrepresented in genomics research or are medically underserved. Questions focused on COVID's impact on participant recruitment, enrollment, and engagement, and the transition to teleresearch. Responses were

SUBMITTER: Kraft SA 

PROVIDER: S-EPMC9839535 | biostudies-literature | 2023 Feb

REPOSITORIES: biostudies-literature