"Extremely slow and capricious": A qualitative exploration of genetic researcher priorities in selecting shared data resources.

ABSTRACT:

Purpose

Genetic researchers' selection of a database can have scientific, regulatory, and ethical implications. It is important to understand what is driving database selection such that database stewards can be responsive to user needs while balancing the interests of communities in equitably benefiting from advances.

Methods

We conducted 23 semistructured interviews with US academic genetic researchers working with private, government, and collaboratory data stewards to explore factors that they consider when selecting a genetic database.

Results

Interviewees used existing databases to avoid burdens of primary data collection, which was described as expensive and time-consuming. They highlighted ease of access as the most important selection factor, integrating conc

SUBMITTER: Trinidad MG 

PROVIDER: S-EPMC9843821 | biostudies-literature | 2023 Jan

REPOSITORIES: biostudies-literature