Disabled, invisible and dismissed-The lived experience of fatigue in people with myeloproliferative neoplasms.

ABSTRACT:

Background

Myeloproliferative neoplasms (MPNs) are rare haematological cancers. Several studies report the most common MPN symptom leading to reduced quality of life is fatigue. Yet, how fatigue affects the lives of people with MPN is not well described.

Aims

The purpose of this qualitative study is to better understand the lived experience of fatigue associated with MPN.

Methods and results

People with MPN who had experienced fatigue were invited to complete an online survey and if eligible, then to participate in semi-structured interviews and focus groups, exploring their experiences of fatigue. Thematic analysis of interview transcripts by two researchers produced themes describing the lived experience of fatigue. Twenty-three people with MPN participated in seven

SUBMITTER: Bradford A 

PROVIDER: S-EPMC9875604 | biostudies-literature | 2023 Jan

REPOSITORIES: biostudies-literature