Addressing Health-Related Quality of Life Among Children With Multiple Sclerosis.

ABSTRACT:

Background

Children with the chronic disease multiple sclerosis (MS) report lower health-related quality of life (HRQOL) compared with children who experience transient illness. The relationship between an MS diagnosis and the HRQOL of affected children is mediated by parental HRQOL. Interventions to improve the HRQOL of children with MS should, therefore, include parents of affected children.

Methods

We performed a configurative review for improvements in the HRQOL of children facing diseases similar to MS and their parents. We used the generated concepts to form theories. Next, we performed qualitative interviews with clinicians who care for children with MS to characterize overlap between the proposed theories and usual care. Finally, we generated recommendations for impr

SUBMITTER: O'Mahony J 

PROVIDER: S-EPMC9881424 | biostudies-literature | 2023 Jan-Feb

REPOSITORIES: biostudies-literature