Paediatric eye and vision research participation experiences: a systematic review.

ABSTRACT:

Background

For children and young people with eye and vision conditions, research is essential to advancing evidence-based recommendations in diagnosis, prevention, treatments and cures. Patient 'experience' reflects a key measure of quality in health care (Department of Health. High Quality Care for All: NHS Next Stage Review Final Report: The Stationery Office (2008)); research participant 'experiences' are equally important. Therefore, in order to achieve child-centred, high-quality paediatric ophthalmic research, we need to understand participation experiences. We conducted a systematic review of existing literature; our primary outcome was to understand what children and young people, parents and research staff perceive to support or hinder positive paediatric eye and vision r

SUBMITTER: Miller J 

PROVIDER: S-EPMC9883950 | biostudies-literature | 2023 Jan

REPOSITORIES: biostudies-literature