Improvement and implementation of a national individual care plan in paediatric palliative care: a study protocol.

ABSTRACT:

Introduction

Paediatric palliative care (PPC) is care for children with life-threatening or life-limiting conditions, and can involve complex high-tech care, which can last for months or years. In 2015, the National Individual Care Plan (ICP) for PPC was developed and has shown to be successful. The ICP can be seen as an instrument to facilitate coordination, quality and continuity of PPC. However, in practice, an ICP is often completed too late and for too few children. We aim to improve the coordination, quality and continuity of care for every child with a life-threatening or life-limiting condition and his/her family by further developing and implementing the ICP in the Netherlands.

Methods and analysis

To evaluate the original ICP, ICP 1.0, interviews and questionnaires

SUBMITTER: Joren CY 

PROVIDER: S-EPMC9884846 | biostudies-literature | 2023 Jan

REPOSITORIES: biostudies-literature