Information, involvement, self-care and support-The needs of caregivers of people with stroke: A grounded theory approach.

ABSTRACT:

Background

Globally, stroke is a leading cause of death and disability, with most care undertaken by caregivers who are generally family and friends without prior experience of care. The lack of experience or unpreparedness results in feelings of uncertainty, burnout, anxiety, burden, etc. Hence, it is necessary to identify the needs of caregivers to better support them in their caregiving journey and improve the quality of care delivered.

Methods

The study employed a grounded theory methodology that utilizes information gathered from literature reviews and social media to represent the needs and create a storyline visually. The storyline is further refined and evaluated using an online survey of 72 participants recruited through online stroke caregiving communities.

Resu

SUBMITTER: Lobo EH 

PROVIDER: S-EPMC9888718 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature