Promoting patient engagement in cancer genomics research programs: An environmental scan.

ABSTRACT: Background: A national priority in the United States is to promote patient engagement in cancer genomics research, especially among diverse and understudied populations. Several cancer genomics research programs have emerged to accomplish this priority, yet questions remain about the meaning and methods of patient engagement. This study explored how cancer genomics research programs define engagement and what strategies they use to engage patients across stages in the conduct of research. Methods: An environmental scan was conducted of cancer genomics research programs focused on patient engagement. Research programs were identified and characterized using materials identified from publicly available sources (e.g., websites), a targeted literature review, and interviews with

SUBMITTER: Schuster ALR 

PROVIDER: S-EPMC9889863 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature