Is time a healer? How quality of life changes over time reported by parents of children and young people with juvenile idiopathic arthritis.

ABSTRACT:

Objective

To investigate changes in health-related quality of life (HRQoL) in children and young people with JIA (Juvenile Idiopathic Arthritis) over 3 years following diagnosis.

Methods

Data on children and young people recruited to the Childhood Arthritis Prospective Study (CAPS) were selected if >5 years of age at diagnosis. HRQoL was assessed at diagnosis (baseline), 1 year and 3 years using the proxy-reported Child Health Questionnaire (CHQ) completed by a parent or guardian. The CHQ measures aspects of HRQoL including physical functioning and mental health. Analyses included descriptive statistics, comparison with a US reference population and analysis of CHQ scores longitudinally and by gender and age of onset.

Results

Using CHQ data from parents/guardians of 1

SUBMITTER: Smith AD 

PROVIDER: S-EPMC9891422 | biostudies-literature | 2023 Feb

REPOSITORIES: biostudies-literature