Diagnostic delay in children with neurodevelopmental conditions attending a publicly funded developmental assessment service: findings from the Sydney Child Neurodevelopment Research Registry.

ABSTRACT:

Objectives

Early developmental assessment is crucial for effective support and intervention. This study examined factors that contribute to (a) older child age when caregivers first became concerned about their child's development and (b) older child age at the point of entry into developmental and diagnostic assessment. We also quantified how factors contributed to risk of children not receiving an assessment by 5 years and considered the acceptability of electronic data capture for families.

Design

This cross-sectional study collected information about caregiver developmental concerns, family history and child characteristics.

Setting

Children and families entered a large, publicly funded hospital-based paediatric developmental assessment service.

Participants

SUBMITTER: Boulton KA 

PROVIDER: S-EPMC9896183 | biostudies-literature | 2023 Feb

REPOSITORIES: biostudies-literature