Understanding parent experiences of end-of-life care for children: A systematic review and qualitative evidence synthesis.

ABSTRACT:

Background

An estimated 21 million children worldwide would benefit from palliative care input and over 7 million die each year. For parents of these children this is an intensely emotional and painful time through which they will need support. There is a lack of synthesised research about how parents experience the care delivered to their child at the end of life.

Aim

To systematically identify and synthesise qualitative research on parents' experiences of end-of-life care of their child.

Design

A qualitative evidence synthesis was conducted. The review protocol was registered in PROSPERO (CRD42021242946).

Data sources

MEDLINE, EMBASE, CINAHL, PsycINFO and Web of Science databases were searched for qualitative studies published post-2000 to April 2020. Studies

SUBMITTER: Barrett L 

PROVIDER: S-EPMC9896294 | biostudies-literature | 2023 Feb

REPOSITORIES: biostudies-literature