Dataset Information

Parental self-efficacy managing a child's medications and treatments: adaptation of a PROMIS measure.

ABSTRACT:

Purpose

Self-efficacy is important for managing chronic conditions; however, its measurement in pediatric healthcare settings remains rare. The goal of this project was to adapt an existing disease-agnostic adult self-efficacy patient reported outcome (PRO) measure to enhance suitability of items for measuring the self-efficacy of parents that manage their children's health conditions.

Methods

We adapted the existing Patient-Reported Outcomes Measurement Information System® (PROMIS®) adult self-efficacy healthcare measure to parental voice. First, a targeted literature review informed rephrasing of the adult items and identification of new pediatric-specific content. The initial item pool was revised based on input from 12 multidisciplinary experts. Next cognitive interviews of adapted items were simultaneously conducted with English and Spanish-speaking parents of pediatric patients with a range of chronic and/or disabling conditions recruited from a Midwestern children's hospital to finalize the measure.

Results

Findings resulted in an initial item pool of 33 pediatric-specific items which were narrowed to 31 draft items based on expert input. Parent cognitive interview findings (N = 26) informed further item reduction resulting in a final measure consisting of 30 items representing nine domains. Fourteen items are relevant to children regardless of condition severity (e.g., health care information/decision making; symptom identification/management) and 16 items are relevant to children with specific health care needs (e.g., medication usage, equipment).

Conclusion

We conducted a first step in developing a condition-agnostic, PRO measure of parental self-efficacy managing their children's chronic and/or disabling conditions that is acceptable and understandable to English and Spanish-speaking parents.

SUBMITTER: Foster CC

PROVIDER: S-EPMC9898482 | biostudies-literature | 2023 Feb

REPOSITORIES: biostudies-literature

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Publications

Parental self-efficacy managing a child's medications and treatments: adaptation of a PROMIS measure.

Foster Carolyn C CC Blackwell Courtney K CK Kan Kristin K Morales Luis L Cella David D Shaunfield Sara S

Journal of patient-reported outcomes 20230203 1

<h4>Purpose</h4>Self-efficacy is important for managing chronic conditions; however, its measurement in pediatric healthcare settings remains rare. The goal of this project was to adapt an existing disease-agnostic adult self-efficacy patient reported outcome (PRO) measure to enhance suitability of items for measuring the self-efficacy of parents that manage their children's health conditions.<h4>Methods</h4>We adapted the existing Patient-Reported Outcomes Measurement Information System® (PROMI ...[more]

PMID: 36735145

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Dataset Information

Parental self-efficacy managing a child's medications and treatments: adaptation of a PROMIS measure.

Purpose

Methods

Results

Conclusion

Publications

Parental self-efficacy managing a child's medications and treatments: adaptation of a PROMIS measure.

Similar Datasets

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