Attitudes of people with multiple sclerosis toward brain donation.

ABSTRACT:

Objective

Research directly examining brain tissue has played an important role in understanding the pathology and pathogenesis of multiple sclerosis (MS) and other diseases of the central nervous system. Such research relies heavily on donations of post-mortem brain tissue yet little is known about the attitudes of people with multiple sclerosis (MS) about brain donation. We aimed to assess the attitudes of people with MS toward brain donation, their preferences related to discussions of brain donation, and factors associated with attitudes toward brain donation including sociodemographic and clinical characteristics, health literacy and religiosity.

Methods

In a cross-sectional study, we surveyed participants in the North American Research Committee on Multiple Sclerosis (

SUBMITTER: Marrie RA 

PROVIDER: S-EPMC9909011 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature