A qualitative study on the views of experts on the social impact of the high-priced orphan drug nusinersen.

ABSTRACT:

Background

Escalating medical costs due to the increasing occurrence of high-priced orphan drugs is a topic discussed in the media and specialist literature. However, there is no study investigating the social impact of such drugs through the views of experts.

Objectives

The aim was to demonstrate the social impact of the orphan drug nusinersen based on the views of experts within the community.

Methods

The study was conducted using two methods for data collection: a media analysis and qualitative semi-structured interviews. In the media analysis, expert comments on nusinersen were extracted from the Finnish media. Interviews were conducted with experts from the fields of pharmacy, medicine, politics/academia, law/economics, hospital management and patient organisatio

SUBMITTER: Rosenberg S 

PROVIDER: S-EPMC9918416 | biostudies-literature | 2023 Mar

REPOSITORIES: biostudies-literature