Healthcare experiences of patients with Down syndrome who are Black, African American, of African descent, or of mixed race.

ABSTRACT: Scant research has explored the healthcare experiences of people with Down syndrome (DS) in the United States who are Black, African American, of African descent, or of mixed race. The purpose of this study was to identify and describe the barriers and facilitators that such patients and their caregivers face when accessing healthcare. We gathered data in three ways: focus groups with caregivers, a national survey completed by caregivers, and in-depth interviews with primary care providers. Many caregivers and primary care physicians felt that patients with DS who are Black, African American, of African descent, or of mixed race receive a lower quality of medical care than their white counterparts with DS. Caregivers mentioned feeling tired of being reminded by the medical community about

SUBMITTER: Krell K 

PROVIDER: S-EPMC9928895 | biostudies-literature | 2023 Mar

REPOSITORIES: biostudies-literature