How do people with MND and caregivers experience a digital mental health intervention? A qualitative study.

ABSTRACT:

Objective

We urgently need to develop and evaluate more psychological interventions to support people with Motor Neurone Disease (MND) and caregivers. We used the person-based approach to develop a digital mental health intervention and conducted two studies to explore people's experiences of using it.

Methods

In Study 1, we conducted think-aloud interviews with 9 people with MND and 8 caregivers, and used findings to refine the intervention. In Study 2, 18 people with MND and 9 caregivers used the intervention for 6 weeks after which in-depth interviews were conducted. Data from both studies were combined and analysed using thematic analysis.

Results

We developed 3 main themes around intervention acceptability, engagement, and usefulness. Participants highlighted the

SUBMITTER: Pinto C 

PROVIDER: S-EPMC9932191 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature