Consensus guidelines for diagnosis and management of anemia in epidermolysis bullosa

ABSTRACT:

Background

Anemia is a common complication of severe forms of epidermolysis bullosa (EB). To date, there are no guidelines outlining best clinical practices to manage anemia in the EB population. The objective of this manuscript is to present the first consensus guidelines for the diagnosis and management of anemia in EB.

Results

Due to the lack of high-quality evidence, a consensus methodology was followed. An initial survey exploring patient preferences, concerns and symptoms related to anemia was sent to EB patients and their family members. A second survey was distributed to EB experts and focused on screening, diagnosis, monitoring and management of anemia in the different types of EB. Information from these surveys was collated and used by the panel to generate 26 c

SUBMITTER: Liy-Wong C 

PROVIDER: S-EPMC9948325 | biostudies-literature | 2023 Jan

REPOSITORIES: biostudies-literature