Building a deeper understanding of social relationship health in adolescents with narcolepsy disorder.

ABSTRACT:

Study objectives

Common symptoms for patients with narcolepsy can have a significant impact on social health. As one peak for symptom onset is adolescence, these symptoms impact social relationships during a critical developmental period. Much of the existing literature in this domain has relied on broad questionnaires, with less insight into the nuances of patients' potential social struggles.

Methods

Adolescents (aged 12-17 years) with narcolepsy and their parents individually completed a semistructured interview (n = 14 dyads). Interview transcripts were analyzed using a multistage thematic analysis.

Results

An overarching theme was the difficulty adolescents experienced trying to balance narcolepsy symptom management with engaging in social activities in a meaning

SUBMITTER: Zhou ES 

PROVIDER: S-EPMC9978442 | biostudies-literature | 2023 Mar

REPOSITORIES: biostudies-literature