Mapping of the current transition of care practice for patients with pituitary disease at Endo-ERN reference centers.

ABSTRACT: Rare endocrine conditions present specific diagnostic and management challenges for healthcare providers, one of which is the understudied transition of care. Despite the need for guidance regarding transition, consensus on structured and protocolled approaches is lacking. Therefore, we aimed to map the current clinical practice and identify unmet needs regarding transition of care for patients with pituitary disease in the reference centers (RCs) of the European Reference Network on Rare Endocrine Conditions (Endo-ERN). A survey-based, cross-sectional study using the EU Survey tool was performed and completed by 46 physicians (n) from 30 RCs (N). Transition is a common practice among RCs (n = 44/46), usually accomplished by a multidisciplinary team meeting (N = 20/30). Criteria for start

SUBMITTER: Shishkov SR 

PROVIDER: S-EPMC9986386 | biostudies-literature | 2023 Feb

REPOSITORIES: biostudies-literature