Carer preparedness improved by providing a supportive educational intervention for carers of patients with high-grade glioma: RCT results.

ABSTRACT:

Background

High-grade glioma (HGG) is a rapidly progressing and debilitating disease. Family carers take on multiple responsibilities and experience high levels of distress. We aimed to deliver a nurse-led intervention (Care-IS) to carers to improve their preparedness to care and reduce distress.

Methods

We conducted a randomised controlled trial (ACTRN:12612001147875). Carers of HGG patients were recruited during patients' combined chemoradiation treatment. The complex intervention comprised four components: (1) initial telephone assessment of carer unmet needs; (2) tailored hard-copy resource folder; (3) home visit; and, (4) monthly telephone support for up to 12 months. Primary outcomes included preparedness for caregiving and distress at 2, 4, 6 and 12 months. Interventi

SUBMITTER: Halkett GKB 

PROVIDER: S-EPMC9992082 | biostudies-literature | 2023 Feb

REPOSITORIES: biostudies-literature