Patient engagement in a national research network: barriers, facilitators, and impacts.

ABSTRACT:

Background

Little is known about patient engagement in the context of large teams or networks. Quantitative data from a larger sample of CHILD-BRIGHT Network members suggest that patient engagement was beneficial and meaningful. To extend our understanding of the barriers, facilitators, and impacts identified by patient-partners and researchers, we conducted this qualitative study.

Methods

Participants completed semi-structured interviews and were recruited from the CHILD-BRIGHT Research Network. A patient-oriented research (POR) approach informed by the SPOR Framework guided the study. The Guidance for Reporting Involvement of Patients and the Public (GRIPP2-SF) was used to report on involvement of patient-partners. The data were analyzed using a qualitative, content analys

SUBMITTER: Gonzalez M 

PROVIDER: S-EPMC9993369 | biostudies-literature | 2023 Mar

REPOSITORIES: biostudies-literature