Genetic Data Governance in Japanese Hospitals

ABSTRACT: Abstract  The storage and access of genetic testing results have unique considerations for medical records. Initially, genetic testing was limited to patients with single gene diseases. Genetic medicine and testing have expanded, as have concerns about appropriately handling genetic information. In this study, we surveyed the management of genetic information in general hospitals in Japan using a questionnaire on access restrictions. Our questions included whether any other medical information was managed in a unique way. We identified 1037 hospitals designated for clinical training located throughout Japan and received responses from 258 hospitals, and 191 reported that they handle genetic information and results of genetic tests. Of the 191 hospitals that handle genetic information, 112

SUBMITTER: Suzuki M 

PROVIDER: S-EPMC9993371 | biostudies-literature | 2023 Mar

REPOSITORIES: biostudies-literature