Public perceptions and attitudes of the national project of bio-big data: A nationwide survey in the Republic of Korea.

ABSTRACT: Background: The National Project of Bio-Big Data (NPBBD) is a South Korean bio-big data collection project, expected to include health, genomic, and lifelog data of one million Koreans. The Ethical, Legal, and Social Implications study is a parallel study active since 2020. As part of the study, a public survey was conducted to evaluate public attitudes towards engagement schemes, such as public committees and web portals for communication between the public and researchers. Methods: An online survey was conducted from March 3-9, 2021, using structured questionnaires addressed to 1,000 adults aged 20-59 years. Results: Several respondents reported a positive attitude towards participation (43.6% "somewhat," 14.3% "definitely"), whereas approximately one-third (36.5%) r

SUBMITTER: Yang JH 

PROVIDER: S-EPMC9995590 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature