Direct Information to At-risk Relatives

ABSTRACT: This study evaluates if uptake of genetic counselling in high-risk families is increased when patients at cancer genetics clinics are being offered healthcare-assisted disclosure to at-risk relatives compared to current standard care (with family-mediated disclosure). Patients/families who have undergone a cancer genetic investigation will be invited to participate in the study. All participants will receive standard care. Half of them will in addition be offered a healthcare-assisted disclosure with the service of direct letters to identified at-risk relatives distributed by the healthcare provider. After a year we will compare the proportion of at-risk relatives who have contacted a cancer genetic clinics in each study arm.

DISEASE(S): Lynch Syndrome,Hereditary Breast Cancer,Familial Breast Cancer,Hereditary Breast And Ovarian Cancer Syndrome,Familial Colorectal Cancer,Breast Neoplasms,Colorectal Neoplasms, Hereditary Nonpolyposis

PROVIDER: 2324598 | ecrin-mdr-crc |

REPOSITORIES: ECRIN MDR