Development of a Family-Centered Communication Tool for Kidney Health in Premature Infants: Qualitative Focus Group Study Using Human-Centered Design Methodology.

ABSTRACT:

Background

Premature infants are at increased risk of kidney-related complications, including acute kidney injury (AKI) and chronic kidney disease (CKD). The risk of CKD in prematurely born infants is underrecognized by health care teams and caregivers. Understanding how to communicate the risk of CKD to caregivers is essential for longitudinal clinical follow-up and adherence.

Objective

This study aimed to determine family caregiver attitudes toward kidney health and risk communication during a neonatal intensive care admission. We also sought to understand caregiver preferences for the communication of information surrounding the risk of CKD in premature infants.

Methods

We augmented standard qualitative group sessions with human-centered design methods to assess pa

SUBMITTER: Starr MC 

PROVIDER: S-EPMC10366965 | biostudies-literature | 2023 Jul

REPOSITORIES: biostudies-literature