Occupational practice in patients with hereditary transthyretin amyloidosis, a qualitative study.

ABSTRACT:

Background

Hereditary transthyretin amyloidosis (ATTRv) is a rare genetic disease that negatively affects patients' quality of life through the involvement of various organs and tissues. Despite a large amount of research on medical and psychosocial interventions, the impact of occupational therapy (OT) on patients with ATTRv is not well understood.

Objective

The aim of this study was to develop an OT programme to improve the daily functioning and quality of life of patients with ATTRv.

Methods

Fourteen patients with ATTRv were interviewed. Together they developed short- and medium-term occupational goals. Patients received the OT intervention for six months. Outcomes were measured using scores for activities of daily living and psychological well-being.

Results

SUBMITTER: Gaya-Barroso A 

PROVIDER: S-EPMC10636990 | biostudies-literature | 2023 Nov

REPOSITORIES: biostudies-literature