Exploratory multi-methods evaluation of an online intervention for carers of people with high-grade glioma.

ABSTRACT:

Background

Inadequate knowledge and skills and a lack of confidence to provide care have been identified as major unmet needs for carers of people with brain cancer. An online intervention was developed to address the unmet needs of carers of people with high-grade glioma.

Methods

Ten carers evaluated the intervention through multiple methods. Acceptability and usability were measured through online data analytics (unique page views, time on page), surveys, and interviews. Questionnaires measured potential impacts on distress (Distress Thermometer), depression, anxiety (Hospital Anxiety and Depression Scale), carer competence (Carer Competence Scale), carer preparedness (Caregiving Preparedness Scale), unmet needs (Supportive Care Needs Scale - Brain Tumor Specific for carer

SUBMITTER: Haydon HM 

PROVIDER: S-EPMC10666811 | biostudies-literature | 2023 Dec

REPOSITORIES: biostudies-literature