Dataset Information

Primary care providers' preferences for the communication and management of actionable genomic findings from a research biobank.

ABSTRACT:

Purpose

Little is known about non-genetics health care specialists' attitudes toward the return and utilization of actionable genomic results from a research biobank. We surveyed primary care providers (PCPs) to explore their perspectives on these results and their preferences for return.

Methods

We administered a paper and web-based 27-question survey to PCPs residing locally and caring for adult patients. Recruitment was conducted in person and by email, focusing on PCPs likely to interact with results generated by our institution's biobank.

Results

Of the ~482 PCPs contacted, 77 (16%) returned surveys. Although most respondents (90%) prefer that a genetics specialist be involved in communicating biobank-generated genomic results to patients, about 40% of respondents reported that a PCP shares the responsibility to discuss these results along with other specialists. A majority of respondents (74%) felt uncomfortable communicating these results to patients. However, respondents reported significantly greater comfort with this process when offered targeted educational resources (62% with vs 10% without resources; P < 10^-5).

Conclusion

PCPs recognize the need to engage with their patients' biobank-generated genomic results but feel uncomfortable in doing so. Relevant resources are needed to improve PCPs' confidence in the use of these types of results to affect patient care.

SUBMITTER: Kudron EL

PROVIDER: S-EPMC10824104 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature

ACCESS DATA

Publications

Primary care providers' preferences for the communication and management of actionable genomic findings from a research biobank.

Kudron Elizabeth L EL Raghavan Sridharan S Lee Yee Ming YM Lowery Jan T JT

Genetics in medicine open 20230830 1

<h4>Purpose</h4>Little is known about non-genetics health care specialists' attitudes toward the return and utilization of actionable genomic results from a research biobank. We surveyed primary care providers (PCPs) to explore their perspectives on these results and their preferences for return.<h4>Methods</h4>We administered a paper and web-based 27-question survey to PCPs residing locally and caring for adult patients. Recruitment was conducted in person and by email, focusing on PCPs likely ...[more]

PMID: 38287920

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Dataset Information

Primary care providers' preferences for the communication and management of actionable genomic findings from a research biobank.

Purpose

Methods

Results

Conclusion

Publications

Primary care providers' preferences for the communication and management of actionable genomic findings from a research biobank.

Similar Datasets

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