Primary care providers' preferences for the communication and management of actionable genomic findings from a research biobank.

ABSTRACT:

Purpose

Little is known about non-genetics health care specialists' attitudes toward the return and utilization of actionable genomic results from a research biobank. We surveyed primary care providers (PCPs) to explore their perspectives on these results and their preferences for return.

Methods

We administered a paper and web-based 27-question survey to PCPs residing locally and caring for adult patients. Recruitment was conducted in person and by email, focusing on PCPs likely to interact with results generated by our institution's biobank.

Results

Of the ~482 PCPs contacted, 77 (16%) returned surveys. Although most respondents (90%) prefer that a genetics specialist be involved in communicating biobank-generated genomic results to patients, about 40% of respondent

SUBMITTER: Kudron EL 

PROVIDER: S-EPMC10824104 | biostudies-literature | 2023

REPOSITORIES: biostudies-literature