Responsiveness and minimal important change of the Family Reported Outcome Measure (FROM-16).

ABSTRACT:

Background

The FROM-16 is a generic family quality of life (QoL) instrument that measures the QoL impact of patients' disease on their family members/partners. The study aimed to assess the responsiveness of FROM-16 to change and determine Minimal Important Change (MIC).

Methods

Responsiveness and MIC for FROM-16 were assessed prospectively with patients and their family members recruited from outpatient departments of the University Hospital Wales and University Hospital Llandough, Cardiff, United Kingdom. Patients completed the EQ-5D-3L and a global severity question (GSQ) online at baseline and at 3-month follow-up. Family members completed FROM-16 at baseline and a Global Rating of Change (GRC) in addition to FROM-16 at follow-up. Responsiveness was assessed using the di

SUBMITTER: Shah R 

PROVIDER: S-EPMC10965873 | biostudies-literature | 2024 Mar

REPOSITORIES: biostudies-literature