Evaluating 'living well' with mild-to-moderate dementia: Co-production and validation of the IDEAL My Life Questionnaire.

ABSTRACT:

Objectives

We aimed to co-produce and validate an accessible, evidence-based questionnaire measuring 'living well' with dementia that reflects the experience of people with mild-to-moderate dementia.

Methods

Nine people with dementia formed a co-production group. An initial series of workshops generated the format of the questionnaire and a longlist of items. Preliminary testing with 53 IDEAL cohort participants yielded a shortlist of items. These were tested with 136 IDEAL cohort participants during a further round of data collection and assessed for reliability and validity. The co-production group contributed to decisions throughout and agreed the final version.

Results

An initial list of 230 items was reduced to 41 for initial testing, 12 for full testing, and 10

SUBMITTER: Clare L 

PROVIDER: S-EPMC10966933 | biostudies-literature | 2023 Oct

REPOSITORIES: biostudies-literature