PHIRI: lessons for an extensive reuse of sensitive data in federated health research.

ABSTRACT:

Background

The extensive and continuous reuse of sensitive health data could enhance the role of population health research on public decisions. This paper describes the design principles and the different building blocks that have supported the implementation and deployment of Population Health Information Research Infrastructure (PHIRI), the strengths and challenges of the approach and some future developments.

Methods

The design and implementation of PHIRI have been developed upon: (i) the data visiting principle-data does not move but code moves; (ii) the orchestration of the research question throughout a workflow that ensured legal, organizational, semantic and technological interoperability and (iii) a 'master-worker' federated computational architecture that supporte

SUBMITTER: Gonzalez-Garcia J 

PROVIDER: S-EPMC11215320 | biostudies-literature | 2024 Jul

REPOSITORIES: biostudies-literature