Opportunities and challenges of a dynamic consent-based application: personalized options for personal health data sharing and utilization.

ABSTRACT:

Background

The principles of dynamic consent are based on the idea of safeguarding the autonomy of individuals by providing them with personalized options to choose from regarding the sharing and utilization of personal health data. To facilitate the widespread introduction of dynamic consent concepts in practice, individuals must perceive these procedures as useful and easy to use. This study examines the user experience of a dynamic consent-based application, in particular focusing on personalized options, and explores whether this approach may be useful in terms of ensuring the autonomy of data subjects in personal health data usage.

Methods

This study investigated the user experience of MyHealthHub, a dynamic consent-based application, among adults aged 18 years or older

SUBMITTER: Lee AR 

PROVIDER: S-EPMC11365279 | biostudies-literature | 2024 Aug

REPOSITORIES: biostudies-literature