Correlation between measured oral health and oral health-related quality of life in people with epidermolysis bullosa: a prospective cohort study.

ABSTRACT:

Background

Inherited epidermolysis bullosa (EB) is a genetic disorder characterized by skin fragility and unique oral features. This prospective study aimed to analyze the correlation between oral health-related quality of life (OHRQoL) and the objectively measured oral health indices of people suffering from EB and within their subtypes.

Methods

The German version of the Oral Health Impact Profile (OHIP-14G) was employed for the assessment of OHRQoL. Furthermore, all participants underwent a comprehensive clinical examination to evaluate their oral health via the Physical Oral Health Index (PhOX). Study participants were included through various self-help groups in Germany, regular appointments at the outpatient clinic for rare diseases with orofacial involvement, at the De

SUBMITTER: Joanning T 

PROVIDER: S-EPMC11657462 | biostudies-literature | 2024 Dec

REPOSITORIES: biostudies-literature